I havent updated lately as it seems there's a lot going on since I left hospital.
I needed to dial 111 a couple of times due to me having allergic reactions to everything I eat. I come out in a rash all over my body even after a few bites of toast. A biscuit makes my skin itch constantly. Doctors made an 'emergency' appointment for an allergy test which is 14th July.
I see my gp a couple of times a week and every time they say I need to be admitted. After feeling my stomach again, I now have three blockages going on. It's agony, I can feel them when I breathe.
I finally saw a dietician today who was absolutely amazing and definitely someone worth talking to.
The scales said I was about 8 stone but, after feeling my stomach she thinks a stone of that is bulk from the blockages so, she thinks I'm about 7 stone.
She was worried about how dehydrated I am and tried to get me admitted there and then for a fluid drip. She understood why I didn't want to be admitted once I explained how I was treated a few weeks ago.
She's prescribed me some high calorie jelly which should arrive at my home in the next 48 hours. I'm now officially on a diet consisting of ice cream, jelly, yoghurt and ice lollies. My intestines can't seem to digest anything solid at all. I can't even have fruit or vegetables as she's worried the fibre is doing me more harm than good. I need to try and drink more but if I'm being sick than stick with what I'm doing. She's going to try to bring my gastro appointment forward as well as my allergy test. I'm optimistic with her help I may get the help I need to get better. If I'm still dehydrated with this diet then I need to be on a fluid drip.
Dehydration really isn't nice. I'm drained all the time, the room spins frequently, I can't feel my feet with how cold they are.
I'm trying to stay as positive as I can, but it's hard to keep a smile on my face when my body is fighting hard to make me sad. I need to keep reminding myself that even though my health isn't great - the love I have around me makes me the luckiest person in the world.
After being diagnosed with Behcet Syndrome, my mom handled the news better than anyone else probably ever could. She didn't let it effect her life and instead continued to be one of the most positive and uplifting person I've ever known. Side effects from tablets have her kidney failure. I remember being in primary school and her being yellow in a hospital bed and just being told she was poorly. Not long after that we're sorting out a cupboard in the house and watching a VHS video of someone explaining dialysis and how to work the machine etc. As young children we would help our mom up off the floor and we would help with so much around the house to help out. Years of steroids definitely took its toll, especially towards the end of her life. Her bones would break by just walking. She had a heart attack one year which she was given an inhaler for, one day she used her inhaler and her fifth invertebrate snapped with mere millimetres of bone protecting her central nervous sy...
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