I had a lovely talk with such a nice dietician lately. She was so understanding of Crohns Disease and seemed to really have incredible knowledge of IBD. She works very closely with the IBD team at Exeter so it was nice. But what I wanted to talk about here was an organisation called 'Talking Health Taking Action' which was founded in 2011. Jane and Jean have worked together for 20 years and started Talking Health to help provide people with chronic illnesses with self-management support. "We work with providers across the NHS, social services, public health and within the voluntary and community sector. We specialise in providing support to organisations seeking to develop programmes that enable people living with long term conditions to develop self-management knowledge, confidence and skills." She offered me this incredible support and was surprised when my first reaction was 'that sounds great, how can I sign up to help other people?'. Whilst so many peop...
After being diagnosed with Behcet Syndrome, my mom handled the news better than anyone else probably ever could. She didn't let it effect her life and instead continued to be one of the most positive and uplifting person I've ever known. Side effects from tablets have her kidney failure. I remember being in primary school and her being yellow in a hospital bed and just being told she was poorly. Not long after that we're sorting out a cupboard in the house and watching a VHS video of someone explaining dialysis and how to work the machine etc. As young children we would help our mom up off the floor and we would help with so much around the house to help out. Years of steroids definitely took its toll, especially towards the end of her life. Her bones would break by just walking. She had a heart attack one year which she was given an inhaler for, one day she used her inhaler and her fifth invertebrate snapped with mere millimetres of bone protecting her central nervous sy...