Dear Future Boyfriend

Dear Future Boyfriend,

I'm sorry that I'm not like any 'normal' girl
I'm sorry that I'm in pain most days
I'm sorry that we might need to cancel things last minute
I'm sorry that we might be late eating at your favourite restaurant
I'm sorry if I moan
I'm sorry if some days I take it out on you
I'm sorry if some days I'm needy and need hugs
I'm sorry if sometimes you visit and my house is a mess - I just haven't been able to clean it
I'm sorry my weight goes up and down so my figure might not be what you enjoy

I'm sorry if what you get isn't what you expect
But what I give in return is so much more than you could imagine
Not only is it just me but I have an amazing son too
I have a massive heart that has so much love to give

When you're old and your joints are aching - who could understand more than someone who's already aching?

There's more to me than crohns disease or fibromyalgia or any other illness I have.

I'm me
I'm Annie

And you know what?
I'm pretty awesome

From,

Annie

Comments

for you, mom

After being diagnosed with Behcet Syndrome, my mom handled the news better than anyone else probably ever could. She didn't let it effect her life and instead continued to be one of the most positive and uplifting person I've ever known. Side effects from tablets have her kidney failure. I remember being in primary school and her being yellow in a hospital bed and just being told she was poorly. Not long after that we're sorting out a cupboard in the house and watching a VHS video of someone explaining dialysis and how to work the machine etc. As young children we would help our mom up off the floor and we would help with so much around the house to help out. Years of steroids definitely took its toll, especially towards the end of her life. Her bones would break by just walking. She had a heart attack one year which she was given an inhaler for, one day she used her inhaler and her fifth invertebrate snapped with mere millimetres of bone protecting her central nervous sy...

Talking Health

I had a lovely talk with such a nice dietician lately. She was so understanding of Crohns Disease and seemed to really have incredible knowledge of IBD. She works very closely with the IBD team at Exeter so it was nice. But what I wanted to talk about here was an organisation called 'Talking Health Taking Action' which was founded in 2011. Jane and Jean have worked together for 20 years and started Talking Health to help provide people with chronic illnesses with self-management support. "We work with providers across the NHS, social services, public health and within the voluntary and community sector. We specialise in providing support to organisations seeking to develop programmes that enable people living with long term conditions to develop self-management knowledge, confidence and skills." She offered me this incredible support and was surprised when my first reaction was 'that sounds great, how can I sign up to help other people?'. Whilst so many peop...

Burnt toast

The moment my mom was sent to hospital I knew that was it. She was so poorly, confused, skin and bone and needed a machine to help her breathe. Living so far away was difficult to see her but I had to. I had to say goodbye whilst she still knew who I was. Her last words to me were 'I know you're talking to me like this because you think I'm going to die. I'm not going anywhere'. I didn't sleep for the whole time she was in there. I kept my phone on loud 24/7. She accidentally called me once saying how well she was and she'll be home soon. I was so exhausted that I fell asleep and missed 40+ text messages and 30+ missed calls whilst my phone was on loud. I woke up, looked at my phone and as my sister called I answered it and said 'she's gone isn't she?' And she had. I put the phone down, knocked on my next door neighbours door and as soon as she opened I just shouted that my mom died. I cried for for like 5 minutes and that was it. The funera...

Chronically Parenting

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