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Food for thought

So recently I spent two weeks in hospital (story of my life). I got there incredibly weak and tired and because of how dehydrated I was I was really tachycardic. I was struggling to eat as swallowing food hurt so bad and when I did finally swallow it I was sick straight away. Even with me not keeping the food down I was going to the toilet up to 60 times a day. I had an endoscopy which showed I had a hiatus hernia which was causing acid in my oesophagus which caused slight inflammation which is why I couldn't swallow food without it hurting like hell. Problem after that was why was I going to the toilet so much?
Bile Acid Malabsorption or Diarrhoea (BAM) is a cause of chronic diarrhoea with the patients having their bowels open several times a day. There can be a number of reasons why patients get this condition and these have been placed in to three types:
  • Type 1: Bile acid malabsorption, secondary to ileal resection, or ileal inflammation
    • Crohn’s disease, ileal resections
  • Type 2: Idiopathic / primary bile acid malabsorption
  • Type 3: Secondary to various gastrointestinal diseases
    • Cholecystectomy, small intestinal bacterial overgrowth, post radiation, coeliac disease, chronic pancreatitis
Problem after that though is I have motility issues in my small intestines where the slightest thing causes such severe constipation that I'm then only able to go once a month to then I need surgery for manual evacuation. So after half of a cholestyramine sachet I'm then unable to go for days so then I'm back on the linaclotide to help me go.
I also had a colonoscopy which was found that because of so many years of undiagnosed crohns, the disease had now effected my nerves. So any wind or movement in my intestines, my nerves think something bad is going on and tells my brain I'm in a hell of a lot of pain. So now I need pain relief for the rest of my life. My file is being sent off to a specialist in London to help deal with my case but in the mean time I apparently have a very long roadahead of me.
Because of all the weight loss I'm then officially told I'm malnourished, I need weekly weigh ins and I'm on forticreme to help build me back up again.
The point of this blog is about weight loss. I've had comments say that I'm 'lucky' to not gain weight and I'm sorry but living like this is not lucky at all.
Maybe thing about what someone is going through before comments are made about how skinny they are. 
We really are damned if we're too thin and damned if we're too fat. 
I talk to so many people daily who suffer from this horrible disease in many different ways. Comments on body image isn't fair. Why can't we all just support each other, love each other for who we are. Instead of saying someone is 'too fat' or 'too thin' or that someone needs a decent meal, meat on their bones, or needs a good salad. Be kind for goodness sake and stop making comments. 

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